tag:blogger.com,1999:blog-833745025615052465.post1931769049376756104..comments2023-05-06T05:20:54.182-07:00Comments on The Marrero Family Making The Most Of Life!: A matter of the brain.linn98367http://www.blogger.com/profile/03764685187926500705noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-833745025615052465.post-28903350326151552102012-06-25T07:48:52.572-07:002012-06-25T07:48:52.572-07:00Thank you so much.I don't think Donna was so m...Thank you so much.I don't think Donna was so much trying to compare them,but saying that her son with Autism,does have Sensory disorders too and what she does to help him.I know Ariel had made a tremendous amount of progress and I am so happy that she has and want her to have the happiest most successful life ever.linn98367https://www.blogger.com/profile/03764685187926500705noreply@blogger.comtag:blogger.com,1999:blog-833745025615052465.post-8566123464279229532012-06-25T04:15:29.142-07:002012-06-25T04:15:29.142-07:00Ariel certainly should not be held in comparison t...Ariel certainly should not be held in comparison to an autistic child, her war is on a completely different battle field with a more fluctuating extreme of needs/requirements at varying peaks in relation to her seizure patterns.<br /><br />You may find Ariel is able to cope with situations better when her neuronal excitement is more reduced (free from seizures/low seizure pattern that day). On her low excitement days the signals will have the opportunity to reach the specific areas needed to engage in social activities, on bad days or prolonged seizure days these areas will be blocked.<br /><br />With Ariel you need to allow her to have majority control over what she can do/can’t do, even though it can be frustrating. All you can do is support her, encourage her and try and develop her confidence - which you are already doing by the bucket load :)<br /><br />The fact that her confidence has gone through the roof since attending her new church and she had the ability to invite so many people to her Birthday party is certainly a step in the right direction. You are certainly doing something right, she may seem stuck in a trench to you - but she is blossoming to me. She is really doing so well, considering what she is going through every single day. I’m not surprised you are so proud of her, she is a credit to you and your husband. You have such a beautiful family (inside and out).Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-833745025615052465.post-45604800947871664692012-06-24T13:11:06.001-07:002012-06-24T13:11:06.001-07:00Thank you Donna,you know I have that book and have...Thank you Donna,you know I have that book and have yet to take the time to read it.I need to make a point of it.linn98367https://www.blogger.com/profile/03764685187926500705noreply@blogger.comtag:blogger.com,1999:blog-833745025615052465.post-90173838851380266832012-06-24T12:19:23.375-07:002012-06-24T12:19:23.375-07:00Linn~ my son Jacob has sensory issues as part of h...Linn~ my son Jacob has sensory issues as part of his Autism. It is very frustrating trying to understand how ordinary noises can be so uncomfortable for our kids, or how intimidating "normal" family gatherings are when crowds make you anxious. I think the important thing is to not completely overwhelm them to the point of a meltdown, but to continue to provide "gentle" challenges to the things they are so sensitive too. Sometimes it helps, sometimes they flip out and you have to start over at square one. Medication has helped Jacob cope with his Autism, but he will always have those challenges. "The Out of Sync Child" book was helpful to me.donnapittman65https://www.blogger.com/profile/03495177695066383018noreply@blogger.com