Friday, August 26, 2016

Our son the soldier

One big occurrence that has happened in our lives is our oldest at home Nicholas joined the United States Armed Forces and is now in the army.

                                            Leaving for boot camp.

Nicholas had chosen to stay at home and help out.So he worked a full time job and paid rent,but was a huge help with helping fix any repairs on the house,lawn maintenance,mechanical work with the cars.You name it he did it.He also was there if dad and I wanted to spend our anniversary away or wanted to go out.He knew medical procedures for the kids if they were to have a seizure and also took care of the animals if we all wanted to go somewhere,but it was time for him to spread his wings and do his own thing.Getting in was no easy task as a homeschooler he had to score 35 points more on his  test just to get in. Not only did he score 35 points higher,but actually scored quite a bit higher and pretty much got his pick of jobs.He had four that he looked into,but chose to be a communication specialist,so he is schooling as of right now on computers and is doing great on all of his tests.This pretty much secures him for life,since everything is so computer based anymore,so if he decides to not reenlist he will have no problem getting a job in the public sector.We decided to throw him a party with friends,barbecue and cake.
It was a nice time.

 Nicholas left for boot camp on April 11th and Daniel and I flew down to Georgia on the 27th of June to see him graduate.They had a family day and an absolutely beautiful graduation ceremony,complete with an amazing band and soldiers doing reenactments.
                       The National infantry museum,where his graduation was held.
                                          Standing in formation.
                            Inside the infantry museum on graduation day.
On family day as well as graduation we were allowed to take him from 9-7pm so that was nice. All he wanted to do was go to places to eat.So we went to the movies and ate and ate and ate.We had a wonderful time and Nick was so happy we were able to go to his graduation.We wished that we all could have gone,but we didn't have anyone to take care of our animals,plus the expense was pretty high.Glad Daniel and I got to be there.
                             Nick showing us the tanks at Fort Benning.

A three year long overdue update.

Wow,I can't believe it's been three years since I've updated this blog.
Time sure goes by fast.
To be honest most of my time has been spent using FB to update little things.
After a whole heap of time spent in and out of the hospital and never ending medical stuff I just got severely burned out.


I was just tired of medical things taking over our lives.
Tired of letting that stuff define us.
Don't get me wrong my kiddo's still have a progressive syndrome that causes intractable epilepsy and severe cognitive decline,especially in Ariel's case,but I just didn't want that to be our focus.
At times I kept hearing myself saying "I just don't want to do this anymore" ,but unfortunately that isn't an option and we are not quitters.
 When there are major seizures or a major medical crisis we deal with that,but then we move on to other things.
I'm not burying my head in the sand and pretending that nothing is wrong,   

but we have to live a life that does not consist of just focusing on all that is wrong,that just makes you miserable and is hardly a life at all.
So like my blog says we are trying to make the most out of life.
The kids still see their Epileptologists,Neurologists and other specialists and are in major genetic medical studies all over the country to see if they can finally figure out this syndrome that they have.I was a little excited that on the paperwork we sent in with our saliva samples it had  Epilepsy with severe cognitive decline listed,so they must be seeing this.
When talking to the Epileptologist at Harborview he told me it is just not normal that people with Epilepsy even Intractable have such severe cognitive decline.
Maybe someday science will catch up with us. 
So the next several blog posts will share what we have been up to.
Some pretty exciting stuff I have to say.
Thanks for sticking around.

Saturday, November 9, 2013

October fun

Hello friends,Sorry for my long hiatus I've just been really swamped.
We just finished spending a week with grandparents.We had a great time having them here.

I wanted to share some of our October fun pictures with you.

First we did some pumpkin carving at the zoo.

That weekend we also worked Zoo Boo.
We ran the mini golf course and enjoyed giving out treats to the kids.

We even had divers carving pumpkins underwater in the aquarium for the kids.

The next event was a Starlight party.
 Ariel in her Cleopatra costume.

Hanging out with Starry.

We also had some fun times at home with grandma & grandpa.

October was a fun month.

Tuesday, October 8, 2013

Alsaka Wildlife Conservation Center

Hello friends,Today on Ariel's Ark we are featuring The Alaska Wildlife Conservation Center.

The Alaska Wildlife Conservation Center is a nonprofit organization dedicated to preserving Alaska’s wildlife through conservation, public education, and quality animal care. AWCC takes in injured and orphaned animals year-round and provides spacious enclosures and quality animal care. Animals that cannot be released into the wild are given a permanent home at the center.
Erin Leighton is the Lead Naturalist at the Center. Working around the Center with the interns, scheduling the daily presentations, animal care taking, and hoping on motor coaches is all a normal day at work. This is her second internship working with animals as an animal keeper. Prior to accepting the internship at our Center; Erin has worked with binturongs, ant eaters, and even trained a camel. With a Bachelor of Science in Biology this is her dream job and can not imagine going anywhere else. As a “Texan” turned “Alaskan” new hobbies include rock climbing, camping, and running around with the Center’s critters. She also writes a blog which is followed by a number of people from all around the globe. A link to her blog is here,

Come be a part of these exciting programs and watch these animals display their natural, “wild”, behavior. Coyotes peer out from behind the brush while a bald eagle swoops in on the salmon remains left by a grizzly bear. Wood Bison plod through 65 acres of tidal flat terrain, as part of a program that will one day restore the species to the Alaskan wilderness. AWCC has provided care for hundreds of displaced animals because visitors like you have made critical contributions in the form of admission fees, donations, memberships, and gift shop purchases.
AWCC encourages you to visit the center with your walking shoes and camera in hand for an educational Alaskan experience to remember. We thank you in advance for your support and assistance in preserving Alaskan wildlife.