Tuesday night Daniel's had another of his bad Grand Mal seizures.No matter how many times I see them I never get used to them.I hate the sound his body makes forcing the oxygen from his lungs.I hate watching my son turn different shades of blue and purple and I really hate seeing all the broken blood vessels all over his body from convulsing so hard and seeing all of the bitten up tongues and injuries he sustains with each one.
Mainly the reason we got to the E.R. is because of Daniel's constant shoulder dislocations 51 at this point.Sometimes he can get them in himself other times not and so we have to go to the E.R.Thankfully they all know Daniel there and are usually pretty quick to get us on our way.This particular day we got stuck in the trauma room,where it's 100 degrees and there's no t.v. and so absolutely nothing to do.
(This is the old fashioned handlebar stache)
Daniel pulled out his phone and started entertaining all his doctors with his various mustaches.I just love his attitude.He never lets things get him down,but just sort of rolls with the punches.
(I called this the grandpa stache,someone else said it looks like the Santa Claus one.)
In this pic I snapped him in an Absence seizure.
( this is the Mucho hombre stache)
He's my hero!
Yesterday was an absolutely beautiful day and since it seems our nice days are so few and far between anymore I took the kids for a walk around the marina.It's such a nice little area around the harbor.
It was nice to get out and get excercise.After the walk I took the kids up to Costco to get some frozen yogart.
That evening Ariel and I went to ladies Bible study.I cannot tell you what an absolute blessing our church is to me.I love all the families there.We have so much fellowship and friendship it's just amazing,something I've never experienced.Anyway during the day Daniel was blanking out quite a lot during the day an indicator that a big seizure is coming.After our Bible study I called home all was good.When I got home I was informed Daniel had,had another bad Grand Mal.
After tugging on his arm a bit we realized his shoulder would be stubborn,so we went to our local E.R. the one you usually never wait in and always get a room.Well I knew one day that would change.They all pretty much know Daniel there.As we were waiting to be triaged the triage nurse came up.This gal I've had issues with in the past.Poor Daniel looked so bad he had petechia all over his face and shoulders from the convulsion being so forceful.
Anyway we sat and sat and sat.After reading her triage notation I could understand why.Thankfully Dr.Campbell came out and said Daniel did you dislocate your shoulder again? Wow,it's pretty bad when they know you that well.He had them take us to a triage room to give him a shot of Dilauden and hopefully relax him enough to pop it back in himself.While waiting I read her triage not it said shoulder complaint(GRRRR!!!!!!) Really not dislocation from a severe shoulder.That made it sound like he had pulled a muscle.
I think the doctor must have gotten on her,because she was nicey,nicey after we got in the triage room.
I don't know what the deal was last night,but everybody and their brother were in the E.R.We sat in that triage room for over two hours.Finally they came and got him into a room.
Finally after two shots Daniel finally managed to pop it in himself.Then we say and waited and waited and waited some more.Daniel knocked out from sheer exhaustion.
The doctor finally came and saw us at 3am.He's actually my favorite E.R. doc.I understand they were just slammed last night,but I was so tired.He wrote Daniel a prescription for pain meds and we fiunally got home at 3:30 in the morning.
Unfortunately new meds never work for long.Please continue to pray for Daniel.
