Hello friends,well we are officially 21 days out from Ariel's crazy Aloha Carnival birthday party.Why do I say crazy,well sort of because this party has taken on a life of it's own.
That's okay with me though,because I want Ariel to feel like a princess on her special day.
In August of 2011 after much testing we found out the she,Daniel and Michael share an unknown Genetic Epileptic Syndrome that is progressive.Unknown meaning we do not know the exact gene mutation,but we know it's there.Most likely a Sodium channel mutation on the brain.
At the time The Epileptologist said Ariel was having seizures every 2-3 minutes.We had no idea.We knew she was having seizures a lot,just not that often.The progressive part was just recently made known to us,although didn't surprise me too much as both Daniel and Ariel's seizures have gotten a lot worse as they've gotten older.
So that's part of the reason we are having this big party,not to mention she's turning 18,which is a big milestone in her life.We've been so blessed that we've had so many from our church and friends offering the use of tables, chairs & awnings and just help.What a blessing.
Icing smiles is doing her cake.Blackbird Bakery is actually going to come here an assemble it.I don't know all the details,just that it will be three tiered with a waterfall and bright tropical flowers.Ariel is so excited.
We are also having a card drive for her,for those that don't live here and would like to participate in making her day more special.
Any cards for her can be sent to P.O. Box 551 Burley,Wa 98322
Hi Ariel,
ReplyDeleteI KNOW you've just got to be getting all excited about your Birthday Party. All the decorations look MAJORLY COOL. LOVE that your church community's getting involved. HOORAY!
Sending oodles of loving support your way.
Ms Lu